Demonstrating Respect and Acceptable Consent Strategies: What Matters to Patients in PCOR?
|Ruth Faden, PhD, MPH, Philip Franklin Wagley Professor, Johns Hopkins Berman Institute of Bioethics|
|Nancy Kass, ScD, Phoebe R. Berman Professor of Bioethics and Public Health, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Deputy Director of Public Health, Johns Hopkins Berman Institute of Bioethics|
About the Project:
Building on lessons learned from our PCORI-funded pilot study (Stakeholder Views of Streamlined Informed Consent Options for CER), this study will measure patients’ views of the acceptability of streamlined disclosure/consent procedures for a low risk randomized CER study under different conditions relating to patient respect, information about the need for more evidence about medical treatments, and the explicit use of the word “choice” when discussing disclosure/consent with patients.
(project underway – no publications to date)